Looking and feeling very legit at the Lyme disease public hearings held in Quebec a couple of weeks ago. This was such an incredible moment, spreading truth to members of all provincial parties alongside renowned Lyme disease experts. Most importantly, I believe we were actually being heard!
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As someone who has been fighting the good Lyme fight for almost 4 years now, the recent developments all felt and feel so surreal (see link in bio for my very first short Lyme interview back then, while quite sick, in a wheelchair, carrying much anger, pain and confusion, and being oh-so-exhausted; I'd gone undiagnosed for 12 years).
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Wasn't this what I had been dreaming of doing for years!? Was I now actually doing this for those who have suffered in silence for far too long, including the frail lost girl that I was back then!? Was I really there that day, at the National Assembly, legitimately expressing myself and with an actual shot at affecting change!? 💥
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This moment simultaneously felt like an out of this world vivid dream that I was observing (while also participating in it), and yet also felt like the most real, natural and grounding moment where I was simply exactly at the right place and the right time, standing firmly in our collective Truth. I trust that what comes next will be the start of a new era of greatness for Lyme disease and co-infections sufferers in Quebec and beyond. 💚
Nothing quite like diving back into my current knitting project to release pent up energy from last week's high-intensity Lyme hearings in Quebec. I'm really proud of the way my body and mind handled all the prep for this event, with 80-hour weeks, dozens of simultaneous tasks and intense pressure to do well for all those I was representing. I am, above all, so grateful to have the relative health to do this and to have had the opportunity to move things forward and push for much needed change. The hearings' conclusions and report should be out in a few weeks, and now I get to breathe (and knit) a little.
That said, coming down from it all has been a trip... and not one I'd like to take you on. After receiving so much stimulation over the last weeks, and responding so generously to the call, my nervous system was shot within hours of my last TV interview. I found myself wide open for taking on all sorts of funky energies, in some form of fight-or-flight mode, filled with fear-based thinking patterns and with the surfacing of old wounds and trauma. What I found hardest was to find compassion for myself through it all, as "shoulds" and "shouldn'ts", "wish I hads" and "why didn't Is" were flooding my brain, and it seemed I had lost all of my precious ammunitions against these liars. But then self-compassion is often our biggest struggle precisely when we need it most, isn't it? This healing thing... man... woman... it will bring you to your knees and have you begging for mercy if you don't find ways to open up to the teachings fast enough!
I'm looking forward to a few days of little tasks, little productivity, lots of love and nurture and the firm intention that regardless what comes up, or how hard it is, I will not run, hide, or project. I will face it all with calm serenity and a beating heart finely and magically tuned to be able to tell the difference between the truth and all fallacies. 💜 Also, happy birthday to my better half and the love of my dreams, @john_glazer! 😘
••• SONDAGE important et très urgent au Québec / Very important and urgent SURVEY in Québec ••• L'Association québécoise de la maladie de Lyme (AQML), dont je suis présidente, a créé le sondage bilingue suivant en prévision des auditions publiques sur la maladie de Lyme qui seront tenues le jeudi 22 mars 2018 à l'Assemblée nationale du Québec. Il s'adresse à l'ensemble de la population québécoise qui est, ou a déjà été, atteinte de la maladie de Lyme et des co-infections, ainsi qu'aux personnes qui sont tombées malades au Québec.
Les résultats de ce sondage nous donneront l'information nécessaire pour bien présenter la réalité des personnes atteintes au Québec à la Commission de la santé et des services sociaux. Les délais sont extrêmement serrés, donc svp répondez au sondage le plus rapidement possible (dès maintenant !) et avant le jeudi • 15 mars •. Il n’y a que quelques jours pour le remplir, alors allez-y ! Et quand c'est terminé, partagez-le partout où vous le pouvez. La succès de ce sondage dépend de vous ! Suivez le lien dans la bio. /
The Québec Lyme Disease Association, which I am president of, put out a bilingual survey in preparation for the public hearings on Lyme disease that will be held on Thursday, March 22nd, 2018, at the National Assembly of Québec. It is meant for anyone in Québec who is or has been ill with Lyme disease and its co-infections, as well as those who became ill while in Québec.
Results from this survey will give us the necessary information to adequately present the reality of sufferers in Québec to the Health and Social Services Committee. There is very little time, so please respond to this survey as soon as possible (like now!) and before Thursday, • March 15th •. There are only a few days to do it, so go! And when you are done, please share it wherever you can. The success of this survey depends on you! Follow link in bio.
We had some pretty big things going down in Quebec on Wednesday in the fight for Lyme disease recognition, where I deposited a parliamentary petition with opposition MNAs on the issue and we held a press conference at the Assembly. The Minister of Health (not a nice human, by any stretch of the imagination) made a statement immediately after shamelessly repeating the same old tired lines saying Quebec has the "best care in the world for chronic Lyme" (total #fakenews). The government rejected the motion to create an urgent action plan with patient input to solve this public health crisis. In the next few weeks, député Pagé, the MNA who helped bring this petition to the Assembly, will be presenting it to the Commission on Health and Social Services and asking them to define a clear mandate surrounding it. It's unsure what any of it will bring at this time, but we definitely have support amongst some politicians who understand the seriousness of the issue and want to help. We got some good media coverage surrounding our petition, which more than 9000 people signed, and we're definitely making more and more of a dent. 😊
As for me, I am quite proud of getting myself this far as a bonafide #lymewarrior. And also a little overdue for some self-tlc over the next few days, as I focus back on my own health and my own breath. 🤗 ❤
If you understand French, follow the link in bio to see how it all unfolded (videos and press). 📷: @john_glazer
