Links

Ressources

Under our skin, 2009 documentary film on lyme disease
ILADS, International Lyme and Associated Diseases Society
Advanced Topics in Lyme Disease, Burrascano, J.J., M.D., Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
CanLyme, Canadian Lyme Disease Foundation
You Can Get Better, Dr. Richard Horowitz

Research

The Latest Lyme Research, Lyme Disease in Canada
Persistence of Borrelia burgdorferi in Rhesus Macaques following Antibiotic Treatment of Disseminated Infection, PLOS ONE
The Infectious Diseases Society of America Lyme guidelines: a cautionary tale about the development of clinical practice guidelines, Philosophy, Ethics and Humanities in Medicine <– this is all about how the IDSA guidelines are corrupt and detrimental to patients
Evaluation of in-vitro antibiotic susceptibility of different morphological forms of Borrelia burgdorferi., Sapi E, Kaur N, Anyanwu S, Luecke DF, Datar A, Patel S, Rossi M, Stricker RB., May 3, 2011
Lyme disease diagnosis and treatment: lessons from the AIDS epidemic., Stricker RB, Johnson L., December 2010
Severity of chronic Lyme disease compared to other chronic conditions: a quality of life survey., L. Johnson, S. Wilcox, J. Mankoff and R.B. Stricker, PeerJ, March 27, 2014

Lyme in the media

Parliament backs Green party leader May’s bill on Lyme disease, Times Colonist (June 11, 2014)
Canadian doctors awareness of Lyme disease below par as disease spreads, Radio Canada International (May 30, 2014) <– I am mentioned in this one.
Irate Lyme Disease Patients Storm “Dinner Party” at IDSA Headquarters, Truthout (May 30, 2014)
Lyme Disease advocate calls for stronger treatment, CBC (May 28, 2014)
Ticks ans Lyme disease: what you need to know, Global Edmonton (May 22, 2014)
Lyme disease diagnosis a battle in Quebec, patients say, CBC News (May 18, 2014) <– I appear in this one too.
Lyme Disease Protest, CBC Montreal News (May 17, 2014) <– I appear in this one.
Lyme disease on the rise in Canada, linked to ticks, Globe and Mail, Adriana Barton (April 27, 2014)
The truth about Lyme disease, MacLeans, Anne Kingston (March 24, 2014)
Green leader goes after Lyme disease, CBC.ca, On the Island (Mar 4, 2014) – audio
Ticked Off: The Mystery Of Lyme Disease, CBC.ca, The Nature of Things (Oct 10, 2013) – video
Lyme disease controversies over diagnosis, treatment at Canada’s first complex, chronic disease program clinic, The Vancouver Sun, Pamela Fayerman (September 11, 2013)
When Lyme Disease Lasts and Lasts, The New York Times, Jane E. Brody (July 8, 2013)
Canadians trapped in Lyme disease limbo, The Hamilton Spectator, Joanna Frketich (Jun 28, 2013)

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4 thoughts on “Links

  1. Hi Marge,

    I received a link to your blog from my cousin Jacqueline in Montreal. My daughter is 32 and has been sick with Lyme for 4 years now. As you say, getting diagnosed and being treated in Canada is a joke. You are not taken seriously. The doctor wanted to put her on anti depressants to get her out of bed. She was diagnosed through igenix in the US and is followed by a naturopath here in Calgary. Alternative medicine is very expensive as you know.

    I hear that you are finally better and traveling soon to Argentina. Congratulations on your admirable courage and steadfastness.

    I plan to listen to your video blog and hear more about your journey. I have copied Marie-Eve on your link.

    Diane

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    1. Hello Diane!
      Thanks for your kind words and for reaching out. I’m sorry for what your daughter is going through, as you know I can definitely imagine how difficult it has been. It certainly must be nice to finally have answers, but it’s a real shame (shameful, really) that Canadians are left out to fend on their own to get diagnosis, treatment (so much for universal healthcare!) and lack the much needed support from the medical community. I am hoping things will change, slowly but surely, in the next few years.
      It is quite true that I am feeling better, much better in fact. I did 6 months of antibiotics, which left me weak and sicker than ever (I think it put all the darn bacteria in hyperdrive and they weren’t actually getting out of my body), then started doing the herbal Cowden protocol, which was helping a little bit. What I found to be by far the most efficient therapy for me has been Bioresonance with a specialist in Montreal. Since I have done my treatments I have essentially come back “from the dead”, meaning that I no longer have to lie down all day long and be cared for, I feel alive for the first time in about 1.5 year and it’s quite an exciting time.
      Please feel free to get my personal contact info from Jacqueline (she will have my husband’s) and I will gladly tell you more or speak with Marie-Eve directly (if she is capable of it at the moment). On peut se parler français aussi. 🙂
      All the best of luck and I wish you and your daughter patience, strength, courage, and of course, healing.
      Marge

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  2. Hi Marge

    I am someone with an extraordinarily unique case of Lyme Disease who has done a lot of research. I am wondering if we can possibly connect? My email is sensorybeing [at] gmail [dot] com — I dearly hope to hear from you.

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  3. Hi marge ! Thanks for the information you gave I live in montreal and was looking for a practionner of bioresonace but didn’t find anyone! Can you please help me and give me the name and the phone number!! I have 2 autoimmune desease and can’t walk !! God b’ess You
    My email n.nehme@hotmail.com

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