Help us protest the inadequate draft federal framework!

Supporters and friends! I need your assistance. Elizabeth May, the Green party leader and great champion of the fight for adequate Lyme disease recognition in Canada, has created an official e-petition that can be defended in parliament following the very disappointing draft federal framework published earlier in February. The petition on change.org that is going around gathered almost 35 000 signatures, which is amazing, but it was not “official”. This is where it really counts!

I just ended a conference call with high ranking Public Health Agency of Canada officials and medical representatives and it is abundantly clear that they are not acting in the patients’ and public’s best interest. Please stand with me for justice and humane treatment for all: sign, share share share, and give Lyme patients a voice.

The official parliamentary petition: https://petitions.parl.gc.ca/en/Petition/Sign/e-903

La pétition en français : https://petitions.parl.gc.ca/fr/Petition/Sign/e-903

On a personal note… believe me when I say that I wish I didn’t have to be a Lyme activist. I wish I could move on from this cause, focus on my healing entirely and be a positive creative force in the world outside of the fight for recognition of Lyme disease. But the truth is, there is so much work left to do and we face roadblocks at every step. This infectious illness, the opportunistic infections that often accompany it and the plethora of health issues that are brought on by its destruction of a person’s immunity (and its action on all bodily systems) can have an absolutely devastating effect on those who are afflicted by it, especially if it is not caught and treated early. Don’t think “big flu” so much, think syphilis, AIDS, illnesses like MS and ALS. Thousands of Canadians are suffering from its consequences, without proper recognition of their health statuses, with loss of income and no access to financial aid, paying tens of thousands of dollars to try to regain their health, and with no real help and often contempt from the medical community. This is my situation and I do not wish it upon anyone. And I am one of the lucky ones: I have a loving and supportive spouse, a fighting spirit, a resilient mind and body (despite it all), and I firmly refuse to internalize the shame and stigma thrown at me from numerous sources. Living with this unrecognized illness and its consequences in Canada is nothing short of hell for so many. Just a few days ago we learned of a member of the Lyme community in Quebec taking his life: http://www.tvanouvelles.ca/2017/02/26/maladie-de-lyme–encore-plus-de-regions-touchees (in French).

Please help make us heard! Much love and health to you all. ❤

“Lyme : quand la maladie nous mord”, a Lyme disease documentary

In the first half of 2016, director Charles Domingue and I conducted many interviews with those afflicted by Lyme disease in Quebec, some of the doctors who treat them, scientists, as well as the very doctors who claim to be unaware of the inadequate treatment of the illness in Canada, and who deny the gravity of the more advanced forms of the disease and their devastating effects on the body. The following documentary is the result of our work (available only in French at the moment).

La Presse+, 3 juillet 2016 : La guerre des tiques

“La maladie de Lyme gagne du terrain au Québec. Et avec les tiques qui la transmettent débarque une intense controverse sur la façon de la diagnostiquer et de la traiter. Patients qui se disent abandonnés, médecins qui crient à l’antiscience, chercheurs dissidents qui se rangent du côté des malades : le point sur cette guerre des tiques qui divise.

diagnocontro
Juillet 2016

UN DOSSIER DE PHILIPPE MERCURE”
– tiré de La guerre des tiques, dossier en 3 sections dans La Presse+, édition du dimanche 3 juillet 2016 (Google translation: Tick wars) :

  1. Des diagnostics controversés
    (Google translation: Controversial diagnoses)
  2. Le débat en trois points
    (Google translation: The debate in three points)
  3. Que faire contre la maladie
    (Google translation: How to stay protected from the illness)

Le nouveau bastion de l’antiscience (Google translation: The new bastion of antiscience), article d’opinion publié le 20 mai 2016 dans La Presse+, écrit par 4 médecins québecois, qui a suscité l’intérêt du journaliste par rapport à la controverse et dont il est question dans le dossier (, crisse).  😉

marge-2014
Mai 2014 (photo tirée du dossier La Presse+)

Ajout: La réponse du père d’une personne atteinte par la maladie, Claude Martin, dans la section débats de La Presse du 10 juillet: L’incroyable incurie du monde médical (Google translation: The incredible negligence of the medical world). “Traiter les autres comme ils le font d’« antiscientifiques » est proprement révoltant. Est-ce que le déni constant constitue la véritable « science » de la communauté médicale du Québec ? Cette communauté fait-elle de la recherche dans ce domaine ? Où est donc votre « science » et comment fonctionne-t-elle ?” – Claude Martin